Catherine and Morgan hold Kailee’s hand as she rests on the couch Saturday, November 7, 2020, at her home in Henrietta, NY.
Kailee passed away at home on November 23, 2020.
“Trying to figure out how I feel is difficult and an internal battle,” Dan wrote in an online journal. “A part of me is in denial and is sad that my baby girl, my hero, the light of my life is gone forever in body. A part of me is relived that she has no more pain. She no longer suffers. No more meds, no more hospitals. It’s a relief of that burden. A large part of me knows she will be in my heart forever. The memories will last my lifetime and the love beyond.”